Other news... she got to go on a walk today. It was just around the unit, but she stared wide-eyed. It was great. I'm sure her nurse thought it a bit ridiculous that she had to push her IV pole and drag her oxygen just so that we could get out of her room, but she did it for us anyways. Hope also got approval for "sham feeds". This is what I like to call "bulimia training". They let her have some pedialyte from a bottle, then they suck it back out with the replogle tube. Nice, huh? She's just happy to get to swallow something down. Hopefully she'll get to keep some down soon.
We also are scheduled for our "care conference" on Friday morning at 9. The GI doc won't be able to make it, which is kind of frustrating. We were given the option to put it off until next week, but I just want it done. Please be praying for God to lead us through this.