Wednesday, January 26, 2011

Eating again!

Hope's GI doc decided that she was growing and should have her tube pulled up into her tummy today. Then she got to start eating out of a bottle. To start, she got 30 ml every 3 hours. Now that she's shown she can handle that, she gets to go up to 45 ml every 3 hours. Every time her bottle feeds go up, the amount they give her through the tube goes down. I'm not sure exactly when she'll get off the tube, but it shouldn't be too far out. Next week I should be able to start nursing her. We should also be coming home sometime next week. However, it has been decided that Hope will need to get lipids 3 times per week while at home. This means we'll hook her up to her broviak at night and it will run while we're sleeping. Not terribly thrilled about having to mess with this, but we are going to be happy to be out of the hospital. We'll keep you posted on when that will be exactly.


  1. This is great news! I'll continue to pray that whe will be able to come home next week.

  2. Hi Amy and Mike,
    So great to see these pictures of Hope! An employee of mine let me know about a place in Spokane called the Spokane Healing Rooms. They will come out to the hospital and pray for Hope. Don't know if you are interested in this, but I told her I would pass on the information. It is
    Spokane Healing Rooms
    112 East 1st Avenue
    Spokane, WA 99203
    and their website is.

    Praying for you all
    Love Diedre

  3. Wow! I'm still praying. Lillian had a broviak, she called them her "toobies", that we had to keep clean and put things in. I know that you'll do great with it. Keep it clean. I guess the hardest thing for Hope would be to keep her from putting it in her mouth. I'm praying for you all and look forward to seeing her grow. God bless you and keep you all well
    Love ya